Emma Appleby was stopped on Saturday as she returned from the Netherlands with the possibly life-saving medicine for her nine-year-old daughter, Teagan, who suffers from the uncommon chromosomal dysfunction isodicentric 15, in addition to Lennox-Gastaut syndrome.
Appleby had hoped the oil, which was prescribed by a paediatrician in Rotterdam and paid for by means of financial savings and crowdfunding, might assist alleviate the struggling of her daughter, who has as much as 300 seizures a day.
However border guards advised her she must get a prescription from a UK physician earlier than she was allowed to deliver the oil into the nation. She now has that prescription and is asking on the Dwelling Workplace to launch the medicine for her sick daughter.
“I’ve performed all the pieces that I’ve been requested to do and jumped by means of each hoop,” Appleby stated. “I can’t do any extra. I’m exhausted. Within the title of compassion I’m pleading with the federal government to return Teagan’s drugs. Every single day that she is with out it’s a day too many.”
Appleby, from Aylesham close to Dover, stated she had been given no technique of contacting the Dwelling Workplace to request the return of the medication as soon as she had obtained the prescription, which was written on Wednesday by a personal specialist.
The Conservative MP Mike Penning, who’s co-chairman of the all-party parliamentary group on medical cannabis underneath prescription, is liaising with officers on her behalf, she stated.
Teagan has not but used the oil, however has been handled with Epidiolex, a cannabis-derived epilepsy drugs not but licensed within the UK however which was prescribed to her on compassionate grounds due to the severity of her situation. It had helped for some time, Appleby stated, however its efficacy appeared to have waned. She hopes the oil may have a stronger impact.
In the intervening time, all Appleby can do when her daughter has a seizure is to attempt to consolation her and, if it continues for too lengthy, to offer her highly effective rescue medicines akin to paraldehyde. That substance stops seizures nevertheless it additionally melts plastic, and Appleby fears its long-term side-effects.
The cannabis oil Appleby obtained is identical as that utilized by Alfie Dingley, whose case emerged final yr and who was ultimately given a particular licence to make use of it. Nonetheless, even when the Dwelling Workplace returns Teagan’s oil, Appleby nonetheless worries about what would possibly occur when it runs out.
“I’ve solely received a three-month provide, so as soon as that’s gone I can’t afford to get one other prescription,” she stated. “We want the prescription on the NHS as properly.”